The Endometriosis Foundation of America Names MyEndometriosisTeam Its Official Online Community

EndoFound and MyHealthTeams partner to bring community, conversation and content to the 1 in 10 women living with endometriosis

 

SAN FRANCISCO — June 15, 2021 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today announced its partnership with the nonprofit organization Endometriosis Foundation of America (EndoFound). EndoFound’s mission is to increase endometriosis awareness, fund landmark research, provide advocacy, and educate the public and medical community. EndoFound has selected MyEndometriosisTeam, the MyHealthTeams’ social network for women living with endometriosis, as its official online community.  

More than 115,000 individuals living with endometriosis have already joined MyEndometriosisTeam to find the people, support and information they need to better manage their condition. EndoFound reaches millions of women facing endometriosis, providing patient education, advocacy and resources that advance understanding. Together, EndoFound and MyEndometriosisTeam are committed to addressing the needs of the 1 in 10 women facing endometriosis.

“The journey to diagnosis and finding a treatment plan that works for them is often long and painful for many individuals living with endometriosis,” said Margaret Caspler Cianci, Executive Director of EndoFound. “Being able to easily connect in a safe, private social network with others facing similar challenges and quickly access trusted information from medical experts provides valuable validation and education. MyEndometriosisTeam is an inspiring example of women showing up for each other – sharing firsthand experiences, practical tips and emotional support.”

EndoFound and MyEndometriosisTeam have collaborated together on many successful initiatives over the past several years, and based on positive feedback from their respective communities, the two organizations are now entering this long term partnership. Together, they will engage and educate women facing endometriosis through joint content development, physician interviews and live Q&A, and community events.

Launched in 2015, MyEndometriosisTeam is a free, password-protected and monitored social network with more than 115,000 registered members. In addition to finding relevant medical information in the Resources section of the social network, members ask questions, get answers, and share conversation with other people just like them who understand the challenges of living with endometriosis.

“EndoFound is a bright light in the lives of millions of women, and is doing such valuable work advancing awareness and treatment of endometriosis,” said Mary Ray, cofounder and COO of MyHealthTeams. “Together with EndoFound, MyEndometriosisTeam will positively impact even more women with this disease through trusted information and social support that helps them thrive.”

This new partnership expands on MyHealthTeams’ work with many leading patient organizations, including the National Psoriasis Foundation, Global Vitiligo Foundation and the PCOS Awareness Association.

 

About Endometriosis

Endometriosis occurs when tissue similar to the inner lining of the uterus, also known as the endometrium, is found outside its normal location, where the tissue should not be. This may result in inflammation, as the tissue even outside the uterus will respond to the monthly fluctuations of the menstrual cycle. The disease affects 1 in 10 reproductive-aged individuals (aged 12-52) – an estimated 200 million women worldwide – and many often experience a decade-long delay in diagnosis. Currently, there is no known exact cause of endometriosis, and there is no cure. 

About EndoFound

The Endometriosis Foundation of America (EndoFound) was co-founded by Padma Lakshmi and Tamer Seckin, MD. in 2009. It strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

 

About MyHealthTeams

MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks that provide support and information for people living with a chronic health condition. Millions of people have joined one of the company’s 41 highly engaged communities focusing on the following conditions: Alzheimer’s, amyloidosis, asthma, autism, breast cancer, COPD, chronic pain, Crohn’s and ulcerative colitis, depression, diabetes (type 2), eczema, endometriosis, epilepsy, fibromyalgia, food allergies, heart disease, hemophilia, hidradenitis suppurativa, HIV, hyperhidrosis, irritable bowel syndrome, leukemia, lung cancer, lupus, lymphoma, migraines, multiple sclerosis, myeloma, myeloproliferative neoplasms, narcolepsy, obesity, osteoporosis, ovarian cancer, Parkinson’s, PCOS, psoriasis, pulmonary hypertension, rheumatoid arthritis, spinal muscular atrophy, spondylitis, and vitiligo.  MyHealthTeams’ social networks are available in 13 countries.

 

Media Contact

Michelle Cox

press@myhealthteams.com

415-823-7574

Survey Finds Only 11 Percent of People Living with Chronic Health Conditions Have Been Contacted by their Doctor about the COVID-19 Vaccine

New research from MyHealthTeams reveals confusion and concerns, pointing to the need for patient education among high-risk populations

SAN FRANCISCO — February 24, 2021 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled survey findings from 2,627 people diagnosed with heart disease, diabetes, obesity, multiple sclerosis (MS) or rheumatoid arthritis (RA). Among this chronic condition population that remains at high risk for severe cases of COVID-19, 36 percent say they are unlikely to get or are unsure about getting the vaccine when it becomes available to them. Underpinning this reluctance is a lack of clear communication and advice from medical experts who treat their disease, with only 11 percent of respondents reporting they’ve been contacted by their doctor about the vaccine.

“About a third of Americans with an underlying health condition – 15% of the entire population – have concerns about getting the COVID vaccine,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “Until they hear a specialist in their disease address five of the biggest concerns they have, they are unlikely to get vaccinated soon.”  

Top questions and concerns about the vaccine among those surveyed include:

  • Possible side effects of the vaccine for people with my disease (55%) 
  • Long-term safety of the vaccine for people with my disease (49%)
  • Will the vaccine interfere with my medications? (47%)
  • Will the vaccine worsen my underlying chronic disease or symptoms? (45%)
  • Will the vaccine be effective given my condition? (39%)

“Nearly 1 in 2 people living with a chronic health condition is worried that the vaccine will interfere with their current treatment or exacerbate the symptoms of their underlying disease,” said Peacock. “Condition-specific guidance from trusted medical experts is essential to creating confidence in the vaccine and in the personal decision to take it, but 89% of patients are not having conversations with their doctors about the vaccine.”

As states across America begin to open vaccine eligibility to more patients with chronic conditions, there is an urgent need for cardiologists, endocrinologists, rheumatologists, neurologists and primary care physicians to proactively educate their patients about the benefits, safety, and urgency of getting vaccinated.

This survey was conducted online from mid-January to mid-February 2021 among members of five social networks – MyHeartDiseaseTeam, DiabetesTeam, MyObesityTeam, MyRATeam, and MyMSTeam – which have a combined 501,878 registered members. 2,627 members completed the survey. 

The Centers for Disease Control and Prevention (C.D.C.) recommends that people with underlying health conditions get the vaccine.

Additional Findings: Physical, emotional and financial impacts of COVID-19

Additional themes explored in the survey include the physical, emotional and financial impacts of COVID-19. 33 percent of respondents reported their underlying health condition has worsened during the pandemic. Specific triggers of worsening symptoms over these 11 months include:

  • Fatigue (71%)
  • Depression / Anxiety (68%)
  • Isolation from family and friends (56%)
  • Cancelled procedures/tests (35%)
  • Too afraid to go the ER (21%)


What’s more, 30 percent of respondents reported they’ve stopped exercising since the pandemic started. 22 percent say they’ve started experiencing other health issues. And 44 percent have gained weight.

Furthermore, 37 percent of survey respondents report they’ve experienced COVID-driven financial hardship since the start of the pandemic. This, of course, contributes to the increased stress among 65 percent of respondents whose conditions have worsened.

“To counteract the wide-ranging, compounding impacts of the pandemic, we must arm people living with chronic health conditions with information that will help them advocate for their health and make decisions with their doctor that are right for them,” said Peacock.

Across MyHealthTeams’ 40 condition-specific patient social networks, the company is creating and curating content from medical experts that addresses member priorities and answers hot-topic questions about the COVID-19 vaccine and maintaining health and wellbeing during the pandemic and beyond.

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks that provide support and information for people living with a chronic health condition. Millions of people have joined one of the company’s 40 highly engaged communities focusing on the following conditions: Alzheimer’s, asthma, autism, breast cancer, COPD, chronic pain, Crohn’s and ulcerative colitis, depression, diabetes (type 2), eczema, endometriosis, epilepsy, fibromyalgia, food allergies, heart disease, hemophilia, hidradenitis suppurativa, HIV, hyperhidrosis, irritable bowel syndrome, leukemia, lung cancer, lupus, lymphoma, migraines, multiple sclerosis, myeloma, myeloproliferative neoplasms, narcolepsy, obesity, osteoporosis, ovarian cancer, Parkinson’s, PCOS, psoriasis, pulmonary hypertension, rheumatoid arthritis, spinal muscular atrophy, spondylitis, and vitiligo.  MyHealthTeams’ social networks are available in 13 countries.

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

The “Gaining Control with Psoriasis” Challenge Empowers People To Work With Their Doctor To Improve Well-Being

Created in partnership with AbbVie Medical Affairs, this new resource center within the MyPsoriasisTeam social network provides tangible tips for improving life with psoriasis 

 

SAN FRANCISCO — January 20, 2021 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today introduced the “Gaining Control with Psoriasis” Challenge. This new resource center, tightly integrated into the MyPsoriasisTeam social network experience and developed in partnership with AbbVie Medical Affairs, is designed to empower people facing psoriasis to improve their physical and emotional well-being in 2021 and beyond. Participants are encouraged to try new things, take notes about their experiences, and then work with their doctor to integrate disease-management approaches and treatments aligned with their personal goals.

The Challenge provides MyPsoriasisTeam members with tangible tips for stepping out of their comfort zone and embracing new ways to improve life with psoriasis. In a survey from the National Psoriasis Foundation, nearly 75 percent of respondents reported that psoriasis negatively impacts their quality of life and infringes on daily activities. 

The “Gaining Control with Psoriasis” Challenge Resource Center features:

  • The Wardrobe Challenge – encouraging people to try clothing items they may have previously deemed off limits due to comfort, color or style;
  • The Self-Care Challenge – encouraging people to set and pursue reachable goals for diet, exercise and gratitude;
  • The Doctor Discussion Challenge – encouraging people to have in-depth conversations with their dermatologist about their physical symptoms, mental and emotional well-being, treatment goals, and experiences with both the Wardrobe and Self-Care Challenges.

Challenge participants are encouraged to journal about their experiences in order to inform conversations with their doctor about changing or trying new treatment options. Opening up these honest, in-depth conversations can help improve the standard of care for people living with psoriasis. The Resource Center also includes an interactive feedback section, where participants can share their experiences with each other.

“Our research among people facing psoriasis underscores that many feel constrained by the condition and aren’t sure how to start something like a new eating or exercise plan that can help improve their symptoms,” said Sean Bogdany, senior vice president of partnerships at MyHealthTeams. “The tangible tips outlined in this Challenge are an empowering tool for MyPsoriasisTeam members, helping them better manage their health through collaborative communication with their doctors.”

Psoriasis is an autoimmune condition that causes raised plaques and scales on the skin – often on the elbows, knees and scalp. One in three people with psoriasis may also develop psoriatic arthritis, with swelling, stiffness and pain in the joints and surrounding areas. Symptoms often start between ages 15 and 25, but can start at any age. Men, women, and children of all skin colors can get psoriasis. Approximately 8 million people in the U.S. are living with psoriasis.

MyPsoriasisTeam is a social network for people diagnosed with psoriasis and psoriatic arthritis. More than 86,000 registered members use the MyPsoriasisTeam web and mobile apps to connect and share with others facing similar challenges and to find the information and support they need to better manage their condition. MyPsoriasisTeam is the official online community of the National Psoriasis Foundation.

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 38 highly engaged communities focusing on the following conditions: Crohn’s and ulcerative colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, asthma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurativa, depression, heart disease, type 2 diabetes, myeloproliferative neoplasms, osteoporosis, spinal muscular atrophy, COPD, chronic pain, migraines, narcolepsy, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574