Survey Finds Only 11 Percent of People Living with Chronic Health Conditions Have Been Contacted by their Doctor about the COVID-19 Vaccine

New research from MyHealthTeams reveals confusion and concerns, pointing to the need for patient education among high-risk populations

SAN FRANCISCO — February 24, 2021 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled survey findings from 2,627 people diagnosed with heart disease, diabetes, obesity, multiple sclerosis (MS) or rheumatoid arthritis (RA). Among this chronic condition population that remains at high risk for severe cases of COVID-19, 36 percent say they are unlikely to get or are unsure about getting the vaccine when it becomes available to them. Underpinning this reluctance is a lack of clear communication and advice from medical experts who treat their disease, with only 11 percent of respondents reporting they’ve been contacted by their doctor about the vaccine.

“About a third of Americans with an underlying health condition – 15% of the entire population – have concerns about getting the COVID vaccine,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “Until they hear a specialist in their disease address five of the biggest concerns they have, they are unlikely to get vaccinated soon.”  

Top questions and concerns about the vaccine among those surveyed include:

  • Possible side effects of the vaccine for people with my disease (55%) 
  • Long-term safety of the vaccine for people with my disease (49%)
  • Will the vaccine interfere with my medications? (47%)
  • Will the vaccine worsen my underlying chronic disease or symptoms? (45%)
  • Will the vaccine be effective given my condition? (39%)

“Nearly 1 in 2 people living with a chronic health condition is worried that the vaccine will interfere with their current treatment or exacerbate the symptoms of their underlying disease,” said Peacock. “Condition-specific guidance from trusted medical experts is essential to creating confidence in the vaccine and in the personal decision to take it, but 89% of patients are not having conversations with their doctors about the vaccine.”

As states across America begin to open vaccine eligibility to more patients with chronic conditions, there is an urgent need for cardiologists, endocrinologists, rheumatologists, neurologists and primary care physicians to proactively educate their patients about the benefits, safety, and urgency of getting vaccinated.

This survey was conducted online from mid-January to mid-February 2021 among members of five social networks – MyHeartDiseaseTeam, DiabetesTeam, MyObesityTeam, MyRATeam, and MyMSTeam – which have a combined 501,878 registered members. 2,627 members completed the survey. 

The Centers for Disease Control and Prevention (C.D.C.) recommends that people with underlying health conditions get the vaccine.

Additional Findings: Physical, emotional and financial impacts of COVID-19

Additional themes explored in the survey include the physical, emotional and financial impacts of COVID-19. 33 percent of respondents reported their underlying health condition has worsened during the pandemic. Specific triggers of worsening symptoms over these 11 months include:

  • Fatigue (71%)
  • Depression / Anxiety (68%)
  • Isolation from family and friends (56%)
  • Cancelled procedures/tests (35%)
  • Too afraid to go the ER (21%)


What’s more, 30 percent of respondents reported they’ve stopped exercising since the pandemic started. 22 percent say they’ve started experiencing other health issues. And 44 percent have gained weight.

Furthermore, 37 percent of survey respondents report they’ve experienced COVID-driven financial hardship since the start of the pandemic. This, of course, contributes to the increased stress among 65 percent of respondents whose conditions have worsened.

“To counteract the wide-ranging, compounding impacts of the pandemic, we must arm people living with chronic health conditions with information that will help them advocate for their health and make decisions with their doctor that are right for them,” said Peacock.

Across MyHealthTeams’ 40 condition-specific patient social networks, the company is creating and curating content from medical experts that addresses member priorities and answers hot-topic questions about the COVID-19 vaccine and maintaining health and wellbeing during the pandemic and beyond.

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks that provide support and information for people living with a chronic health condition. Millions of people have joined one of the company’s 40 highly engaged communities focusing on the following conditions: Alzheimer’s, asthma, autism, breast cancer, COPD, chronic pain, Crohn’s and ulcerative colitis, depression, diabetes (type 2), eczema, endometriosis, epilepsy, fibromyalgia, food allergies, heart disease, hemophilia, hidradenitis suppurativa, HIV, hyperhidrosis, irritable bowel syndrome, leukemia, lung cancer, lupus, lymphoma, migraines, multiple sclerosis, myeloma, myeloproliferative neoplasms, narcolepsy, obesity, osteoporosis, ovarian cancer, Parkinson’s, PCOS, psoriasis, pulmonary hypertension, rheumatoid arthritis, spinal muscular atrophy, spondylitis, and vitiligo.  MyHealthTeams’ social networks are available in 13 countries.

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

The “Gaining Control with Psoriasis” Challenge Empowers People To Work With Their Doctor To Improve Well-Being

Created in partnership with AbbVie Medical Affairs, this new resource center within the MyPsoriasisTeam social network provides tangible tips for improving life with psoriasis 

 

SAN FRANCISCO — January 20, 2021 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today introduced the “Gaining Control with Psoriasis” Challenge. This new resource center, tightly integrated into the MyPsoriasisTeam social network experience and developed in partnership with AbbVie Medical Affairs, is designed to empower people facing psoriasis to improve their physical and emotional well-being in 2021 and beyond. Participants are encouraged to try new things, take notes about their experiences, and then work with their doctor to integrate disease-management approaches and treatments aligned with their personal goals.

The Challenge provides MyPsoriasisTeam members with tangible tips for stepping out of their comfort zone and embracing new ways to improve life with psoriasis. In a survey from the National Psoriasis Foundation, nearly 75 percent of respondents reported that psoriasis negatively impacts their quality of life and infringes on daily activities. 

The “Gaining Control with Psoriasis” Challenge Resource Center features:

  • The Wardrobe Challenge – encouraging people to try clothing items they may have previously deemed off limits due to comfort, color or style;
  • The Self-Care Challenge – encouraging people to set and pursue reachable goals for diet, exercise and gratitude;
  • The Doctor Discussion Challenge – encouraging people to have in-depth conversations with their dermatologist about their physical symptoms, mental and emotional well-being, treatment goals, and experiences with both the Wardrobe and Self-Care Challenges.

Challenge participants are encouraged to journal about their experiences in order to inform conversations with their doctor about changing or trying new treatment options. Opening up these honest, in-depth conversations can help improve the standard of care for people living with psoriasis. The Resource Center also includes an interactive feedback section, where participants can share their experiences with each other.

“Our research among people facing psoriasis underscores that many feel constrained by the condition and aren’t sure how to start something like a new eating or exercise plan that can help improve their symptoms,” said Sean Bogdany, senior vice president of partnerships at MyHealthTeams. “The tangible tips outlined in this Challenge are an empowering tool for MyPsoriasisTeam members, helping them better manage their health through collaborative communication with their doctors.”

Psoriasis is an autoimmune condition that causes raised plaques and scales on the skin – often on the elbows, knees and scalp. One in three people with psoriasis may also develop psoriatic arthritis, with swelling, stiffness and pain in the joints and surrounding areas. Symptoms often start between ages 15 and 25, but can start at any age. Men, women, and children of all skin colors can get psoriasis. Approximately 8 million people in the U.S. are living with psoriasis.

MyPsoriasisTeam is a social network for people diagnosed with psoriasis and psoriatic arthritis. More than 86,000 registered members use the MyPsoriasisTeam web and mobile apps to connect and share with others facing similar challenges and to find the information and support they need to better manage their condition. MyPsoriasisTeam is the official online community of the National Psoriasis Foundation.

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 38 highly engaged communities focusing on the following conditions: Crohn’s and ulcerative colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, asthma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurativa, depression, heart disease, type 2 diabetes, myeloproliferative neoplasms, osteoporosis, spinal muscular atrophy, COPD, chronic pain, migraines, narcolepsy, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

New MyMSTeam Resource Center Educates People Living With Multiple Sclerosis On The Importance of Treatment and Adherence

MyHealthTeams and EMD Serono team to provide actionable information and tips for starting and staying on disease-modifying therapies

 

San Francisco — June 24, 2020 — Today, MyHealthTeams and EMD Serono, through their MS-LINK initiative,  announced the launch of the Treatment and Adherence Resource Center within MyMSTeam, the social network for people living with multiple sclerosis (MS). The Resource Center is designed to help diagnosed patients and their families understand the importance of starting treatment and provides actionable tips for staying on disease-modifying therapies (DMTs). 

“Now, perhaps more than ever, the MS community is faced with challenges they never may have anticipated and have questions about how to navigate treating their disease during these difficult times,” said Terrie Livingston, Head of Patient and Payor Solutions at EMD Serono. “Our MS-LINK initiative remains committed to the MS community by supporting programs like the Treatment and Adherence Resource Center, which offers quick access to trusted information that can help them effectively discuss issues and make decisions with their healthcare provider.” 

Featured articles within the MyMSTeam Treatment and Adherence Resource Center include:

“Even under normal circumstances it can be hard for people with MS to stay on their medication,” explains Eric Peacock, cofounder and CEO of MyHealthTeams. “The coronavirus pandemic only heightens the need for us to do everything we can to go directly to patients with the information they need to advocate for themselves and best manage their MS.” 

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 37 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, spinal muscular atrophy, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries. 

 

About EMD Serono
EMD Serono – the biopharmaceutical business of Merck KGaA, Darmstadt, Germany, in the U.S. and Canada – is engaged in the discovery, research and development of medicines for patients with difficult to treat diseases. The business is committed to transforming lives by developing and delivering meaningful solutions that help address the therapeutic and support needs of individual patients. Building on a proven legacy and deep expertise in neurology, fertility and endocrinology, EMD Serono is developing potential new oncology and immuno-oncology medicines while continuing to explore potential therapeutic options for diseases such as psoriasis, lupus and MS. Today, the business has approximately 1,500 employees around the country with commercial, clinical and research operations based in the company’s home state of Massachusetts. www.emdserono.com

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

Research Among People Living With Lupus Finds Widespread, Under-Addressed Anxiety and Depression

New study from MyHealthTeams reveals patients’ dissatisfaction with current lupus treatments, creating an opportunity for doctors

SAN FRANCISCO — April 13, 2020 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among the more than 170,000 registered members of MyLupusTeam, the social network for people facing lupus. Key findings included insights into the prevalence of anxiety and depression, patients’ dissatisfaction with current lupus treatments, and common quality-of-life impacts of the disease.

 

“This research, conducted just before the COVID-19 outbreak, shines a light on the fact that the normal pain and fatigue associated with Lupus can lead to depression and anxiety,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “Now more than ever, it is important that healthcare providers listen for and treat these broader symptoms in order to build lasting and effective relationships with their patients facing lupus. Patients with lupus need to feel heard – something made more difficult with folks having to shelter in place.”

 

Anxiety and Depression: Commonly experienced, inadequately addressed

69% of those surveyed report being less than fully satisfied with their current lupus medication. Yet when asked what they wish their doctor would do differently, only 9% said “new treatments.” Overwhelmingly, what people living with lupus want from their doctors is: “listening and understanding” (33%), “more information” (22%) and “more time” (22%).

 

Impact on Quality of Life: Wide-ranging symptoms and flare-up triggers

Lupus, a long-term autoimmune disease in which the body’s immune system becomes hyperactive and attacks normal, healthy tissue, creates daily challenges that impact people at home and work.

Common symptoms of lupus include:

  • Joint pain / swelling (93%)
  • Fatigue (92%)
  • Muscle pain (81%)
  • Skin issues (79%)
  • Numb / tingling hands or feet (75%)

Top triggers that exacerbate lupus symptoms include:

  • Stress (87%)
  • Sunlight / UV exposure (71%)
  • Cold weather (66%)
  • Hot weather (53%)

The result, as reported by those surveyed, is that lupus dramatically decreases overall quality of life, impacting life at home and work.

  • 85% say lupus makes it hard for them to exercise.
  • 83% find it difficult to do everyday chores.
  • 77% say lupus interferes with their social life.
  • 71% say it interrupts career and education.
  • 62% find it difficult to be sexually active.

 

This research was conducted among the more than 170,000 registered members of MyLupusTeam. 593 individuals responded to the online survey. Full survey findings are available at www.mylupusteam.com/resources.

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 35 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, spinal muscular atrophy, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

New Research Among People Living With Rheumatoid Arthritis Reveals Key Determinants Of Patient Satisfaction With Doctors

MyHealthTeams provides real-world insights into RA’s common symptoms, flare-up triggers, and quality-of-life-impact

 

SAN FRANCISCO — March 19, 2020 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among registered members of myRAteam, the social network for people living with rheumatoid arthritis (RA). Key findings spanned topics including patient satisfaction with their doctors, the impact RA has on quality of life, and common symptoms and flare-up triggers.

 

“Joint pain is just the tip of the iceberg for those living with rheumatoid arthritis. You’ve got to treat the whole person, not just their obvious symptoms,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “RA patients in this research made it clear that the best rheumatologists are those who take the time to truly understand the full range of symptoms and the quality of life impact people with RA are experiencing. The gap between patients satisfied and dissatisfied with their doctors was stark.”

 

Patient Satisfaction: Determined by listening/understanding, time spent, and breadth of discussion

There is a high correlation between treatment satisfaction and doctor satisfaction, so if treatment isn’t working to control a patient’s RA, it’s unlikely she will be satisfied with her doctor. But treatment effectiveness isn’t the only driver. The study revealed a significant experience gap between those who are satisfied or not with their doctors. Among the 57% of RA patients who report overall satisfaction with their doctors: 87% feel their doctor listens to them and understands their needs; 81% believe their doctor spends enough time with them; 74% report their doctor addresses symptoms such as pain, depression and anxiety; 65% discuss treatment side effects with their doctor; and 52% say their doctor has worked with them to develop a long-term plan. Among the 43% of RA patients who report overall dissatisfaction with their doctors, these numbers drop to 24%, 26%, 20%, 29% and 12% respectively. 

 

Impact on Quality of Life: Daily challenges and emotional impacts take toll at home, work and beyond

RA, a chronic inflammatory condition in which the body’s immune system attacks its own tissue, including joints, has wide-ranging impact on quality of life.

  • 88% of myRAteam members surveyed report RA makes it difficult to do everyday chores
  • 84% find it difficult to exercise with RA
  • 78% say RA has a negative impact on their social life
  • 65% report RA disrupts their work and/or education
  • 62% find it difficult to be sexually active while living with RA

 

Further, the emotional toll of RA is significant.

  • 83% of those surveyed report they can’t sleep
  • 72% are dealing with depression
  • 67% experience anxiety

 

Symptoms and Triggers: Aggravated by environmental factors, disease causes symptoms well beyond joint pain and stiffness

Beyond the joint pain and stiffness experienced by nearly everyone surveyed, myRAteam members report a broad spectrum of symptoms, including:

  • Fatigue (93%)
  • Dry eyes or mouth (72%)
  • Irritability (62%)
  • Headaches (54%)

 

The top reported triggers for flare-ups of RA symptoms are stress (79%) and cold weather (73%). 

This research was conducted among registered members of myRAteam. 374 individuals responded to the online survey. Full survey findings are available at https://www.myrateam.com/resources/the-results-are-in-people-living-with-rheumatoid-arthritis-are-more-satisfied-with-their-doctors-when-they-feel-heard-and-understood

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 35 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

MyHealthTeams and the Global Vitiligo Foundation Team to Bring Consumer-Relevant, Medically Reviewed Content to the Vitiligo Community

MyVitiligoTeam named the official Global Vitiligo Foundation social network for people with vitiligo

 

SAN FRANCISCO— March 3, 2020 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today announced its collaboration with the Global Vitiligo Foundation, an organization whose mission is to improve the quality of life for individuals with vitiligo through education, research, clinical care and community support. Together, the two will bring relevant, trusted health education information and resources to people via MyVitiligoTeam, a social network designed just for people facing vitiligo.

 

Launched in January 2020, more than 1,000 registered members have already joined MyVitiligoTeam, the 34th condition-specific social network created by MyHealthTeams. Reflecting a shared commitment to improving quality of life for people living with vitiligo, the two organizations will create and publish medically reviewed content featured within the social network. Members of the social network will be invited to join “Ask the Vitiligo Specialist” Q&A sessions throughout the year, and MyVitiligoTeam will participate in events including the Global Vitiligo Foundation’s Annual Scientific Symposium, World Vitiligo Day – USA, and the Vitiligo International Symposium meeting.

 

“As a kid diagnosed with vitiligo, I didn’t know anyone else facing the condition and I wasn’t sure where to find good information about it,” said Eric Peacock, co-founder and CEO of MyHealthTeams. “MyVitiligoTeam and our collaboration with the Global Vitiligo Foundation changes all that. Now, people can easily connect with others just like them and tap into relevant medical information.”

 

Vitiligo is an autoimmune condition where melanocytes, the cells responsible for skin pigmentation, are destroyed by the immune system, leaving light patches of skin. More than 70 million people worldwide have vitiligo, and an estimated 30% are children. Many people living with vitiligo report feeling isolated, as the disease is widely misunderstood and difficult to hide. There is no known cure.

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 35 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, vitiligo, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

MyHealthTeams and EMD Serono Launch Family Planning Resource Center to Provide Families Affected by Multiple Sclerosis with Information, Connection and Support

New resource empowers prospective mothers with MS and their partners to have conversations about family planning

 

SAN FRANCISCO — JANUARY 9, 2020 — Today, MyHealthTeams and EMD Serono announced the launch of the Family Planning Resource Center within MyMSTeam, a social network for people living with multiple sclerosis (MS). The Resource Center is designed to support prospective mothers and their loved ones with family planning information and resources before, during and after pregnancy.

 

“Being proactive and planning ahead is so important for women living with MS and thinking about having a baby,” said Terrie Livingston, Head of Patient and Payor Solutions at EMD Serono. “Making it easy to find reliable, actionable information is critical to helping people make the decisions that are right – for them, their baby and their family.”

 

Featured articles within the Family Planning Resource Center include:

 

“More people than ever before are having babies following diagnosis with MS, but they have a growing list of questions about how to navigate the associated challenges,” said Mary Ray, cofounder and COO of MyHealthTeams. “The MS & Family Planning Resource Center arms MyMSTeam members with information to effectively talk with their doctors about planning for and managing pregnancy.”

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 34 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, vitiligo, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

About EMD Serono
EMD Serono – the biopharmaceutical business of Merck KGaA, Darmstadt, Germany, in the U.S. and Canada – is engaged in the discovery, research and development of medicines for patients with difficult to treat diseases. The business is committed to transforming lives by developing and delivering meaningful solutions that help address the therapeutic and support needs of individual patients. Building on a proven legacy and deep expertise in neurology, fertility and endocrinology, EMD Serono is developing potential new oncology and immuno-oncology medicines while continuing to explore potential therapeutic options for diseases such as psoriasis, lupus and MS. Today, the business has approximately 1,300 employees around the country with commercial, clinical and research operations based in the company’s home state of Massachusetts. 

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

People Living With Type 2 Diabetes Want Information and Empathy From Their Doctors More Than New Medications

New consumer research from MyHealthTeams reveals patient priorities

SAN FRANCISCO — DECEMBER 10, 2019 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among the more than 100,000 registered members of DiabetesTeam, the social network for people living with Type 2 Diabetes. A majority (59%) of those surveyed report they are either not satisfied or only somewhat satisfied with their current treatment. Yet when asked what they most want from their doctor, only 6% said “new treatments.” More than 7 times as many respondents prioritized wanting their endocrinologist to provide  “more information” on recommended lifestyle changes (22%) and “listening and understanding” about the challenges of managing their diabetes (21%).

 

The issue is not a lack of understanding about the importance of lifestyle changes. The gap is in getting practical tips for successfully adopting lifestyle changes — especially in the context of dealing with the wide-ranging impact diabetes has on daily life. MyHealthTeams identified two key areas in which people living with diabetes know they want to improve – but aren’t sure what to do or how to start:

  • Diet: 74% of those surveyed report they understand the importance of a healthy diet, but most do not know how to effectively change their eating habits. They want practical tips on foods to eat, recipes to try and grocery lists to follow.  This is rarely offered in the doctor’s office.
  • Exercise: 59% understand the importance of exercise, but 46% report their condition makes it hard to exercise and they’re not sure how to start. They want specific tips from their doctors on ways to start exercising, even while dealing with the pain and fatigue that often accompanies diabetes.

Quality of Life Impact
Beyond high blood sugar, people with Type 2 Diabetes report experiencing a wide range of symptoms of the disease in the past year, including:

  • Fatigue (65%)
  • Numbness (53%)
  • Frequent Urination (52%)
  • Itching (46%)
  • Dry Feet (44%)
  • Intense Thirst (38%)
  • Neuropathy (31%)

The impact of diabetes on daily life is significant, with survey respondents reporting top challenges including:

  • Hard to sleep at night (51%)
  • Depression / anxiety (45%)
  • Difficult to be sexually active (43%)
  • Hard to do everyday chores (41%)
  • Interferes with social life (33%)

“What’s clear is that managing blood sugar is just one piece of the diabetes puzzle, and people living with this condition are juggling a lot,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “The call to action across the healthcare ecosystem is to empower consumers with information and support to act as their own health advocates within this context. People need practical advice and emotional empathy. It’s about much more than medicine.”

This research was conducted among the more than 100,000 registered members of DiabetesTeam. 478 individuals responded to the online survey. Full survey findings are available at https://www.diabetesteam.com/resources/the-results-are-in-what-people-with-type-2-diabetes-want-most-from-their-doctors-is-information-not-new-treatments.

 

About MyHealthTeams
MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 34 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

 

Media Contact
Michelle Cox
press@myhealthteams.com
415-823-7574

People With Heart Disease Want Lifestyle Tips and Empathy From Their Doctors 550% More Than They Want New Medications

New consumer research from MyHealthTeams reveals patient priorities

SAN FRANCISCO — OCTOBER 30, 2019 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among the more than 21,000 registered members of MyHeartDiseaseTeam, the social network for patients with heart disease. A majority (56%) of those surveyed report they are either not satisfied or only somewhat satisfied with their current treatment. Yet when asked what they most want from their doctor, only 8% said “new treatments.” More than five times as many respondents prioritized wanting their cardiologist to provide  “more information” on recommended lifestyle changes (22%) and “listening and understanding” about the challenges of managing their heart disease (22%).

Contrary to popular belief, the vast majority of people with Heart Disease know the importance of making lifestyle changes to improve their condition around diet and exercise, and they want to make those changes. The problem is that they do not always know how to safely make those changes. MyHealthTeams identified two key areas in which people living with heart disease know they want to improve – but aren’t sure what to do or how to start:

  • Exercise: 75% understand the importance of exercise, but 70% report their condition makes it hard to exercise and they’re not sure how to start or how to safely exercise. Nearly half of the respondents have had a heart attack in the past and live in constant fear of another heart attack. Exertion and exercise often trigger symptoms of chest pain from angina that leaves patients wondering, “Is this a heart attack? Should I be going to the ER?”  They want specific tips from their doctors on safe ways to start exercising.
  • Diet: 85% of those surveyed report they understand the importance of a healthy diet, but most do not know how to effectively change their eating habits. They want practical tips on foods to eat, recipes to try and grocery lists to follow.  This is rarely offered in the doctor’s office.

Quality of Life

The impact of heart disease on daily life is wide-ranging, with survey respondents reporting challenges including:

    • Hard to do everyday chores (65%)
    • Interferes with social life (58%)
    • Hard to sleep at night (57%)
    • Makes me feel isolated / alone (50%)
    • Disrupts work / education (45%)
    • Hard to be sexually active (43%)
    • Negatively impacts family (41%)

“People living with heart disease are grasping for practical advice about how to eat and exercise to better manage their condition, and they’re seeking emotional support and lifehacks to help them deal with the personal and social impacts of the disease,” said Eric Peacock, co-founder and CEO of MyHealthTeams. “This requires thinking beyond the pill and creates opportunities to engage patients beyond the doctor’s office. Today’s consumers play an active role in improving their health, and many of us across the healthcare ecosystem can further empower them — starting by listening to and addressing their priorities.”

This research was conducted among the more than 21,000 registered members of MyHeartDiseaseTeam. 233 individuals responded to the online survey. Full survey findings are available: https://www.myheartdiseaseteam.com/resources/the-results-are-in-what-patients-with-heart-disease-want-most-from-their-cardiologists-is-information-not-new-treatments. Additional graphics are available upon request.

About MyHealthTeams

MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 33 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

Media Contact

Michelle Cox

press@myhealthteams.com

415-823-7574

MyHealthTeams Raises $9.44 Million in Financing Round Led By Strategic Investor UCB

Now serves more than 2 million registered members
across 33 condition-specific patient social networks

 

SAN FRANCISCO — AUGUST 15, 2019 — MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, announced today it has raised $9.44 million in a Series B financing round led by strategic investor UCB, a global biopharmaceutical company. The new funds will be used to fuel MyHealthTeams’ continued growth, including expansion of the company’s existing social networks as well as the launch of additional social networks that make it easy for people diagnosed with a chronic disease to connect with others living with similar challenges and to find relevant, objective information about managing their health.

 

“Today’s healthcare consumer relies on a broad ecosystem for information and support, and MyHealthTeams’ social networks play an important role,” said Taco van Tiel, Head of Axial Spondyloarthritis at UCB. “UCB has successfully partnered with MyHealthTeams to create patient engagement programs that close gaps in knowledge and care. Our investment reflects our ambition to transform the lives of people living with severe diseases. UCB works with stakeholders like MyHealthTeams to address the unmet needs of these patients and bring them differentiated solutions that make a meaningful difference in their lives.”

 

Recent milestones for MyHealthTeams include:

  • 2 million registered members who actively share information, resources, lifehacks and emotional support via MyHealthTeams’ web and mobile apps;
  • 33 social networks that feature relevant, objective information about specific chronic health conditions;
  • Expansion into 13 English-speaking countries, building a global network of patients facing chronic conditions;
  • Partnerships with 9 of the top 10 global pharmaceutical companies and 19 other biopharma and healthcare companies that share MyHealthTeams’ focus on addressing unmet patient needs;
  • Introduction of Smart Recommendations that personalize patient education and transform patient activation by leveraging natural language processing and machine learning technologies;
  • Enhanced operational footprint, with the recent opening of MyHealthTeams’ office in Sacramento;
  • Team growth, including the hire of Christian Pran as EVP Partnerships; and
  • Expansion of partner integration opportunities spanning patient education and activation, media solutions, patient research and insights, and clinical trials.

 

“Improving health outcomes requires thinking beyond the pill and operating beyond the doctor’s office,” said Eric Peacock, cofounder and CEO of MyHealthTeams. “Living with a chronic health condition is a daily reality for nearly half the people in the world, and our social networks empower members to find information and support to help them better manage their conditions. This financing will help accelerate and amplify that impact for millions of people.”

 

This financing brings total investment in MyHealthTeams to $26.84 million, building on the company’s Seed and Series A1, A2 and A3 rounds from investors including Adams Street Partners, Qiming US Ventures, CVS Health, The Westly Group, HealthTech Capital and 500 Startups.

 

 

About UCB

UCB, Brussels, Belgium (www.ucb.com) is a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the immune system or of the central nervous system. With 7,500 people in approximately 40 countries, the company generated revenue of € 4.6 billion in 2018. UCB is listed on Euronext Brussels (symbol: UCB). Follow us on Twitter: @UCB_news

 

 

About MyHealthTeams

MyHealthTeams believes that if you are diagnosed with a chronic condition, it should be easy to find and connect with others like you. MyHealthTeams creates social networks for people living with a chronic health condition. Millions of people have joined one of the company’s 33 highly engaged communities focusing on the following conditions: Crohn’s and colitis, multiple sclerosis, lupus, fibromyalgia, pulmonary hypertension, spondylitis, eczema, myeloma, hyperhidrosis, rheumatoid arthritis, psoriasis, leukemia, lymphoma, irritable bowel syndrome, Parkinson’s, Alzheimer’s, epilepsy, hemophilia, hidradenitis suppurative, depression, heart disease, type 2 diabetes, osteoporosis, COPD, chronic pain, migraines, food allergies, obesity, HIV, PCOS, endometriosis, breast cancer and autism.  MyHealthTeams’ social networks are available in 13 countries.

 

 

Media Contact

Michelle Cox

press@myhealthteams.com

415-823-7574