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Impact of Hemophilia and Quality of Life

Research was undertaken on MyHemophiliaTeam to better understand the overall impact of hemophilia on quality of life, what symptoms are experienced by hemophilia patients and satisfaction with quality of care. Method was a survey of 47 members of MyHemophiliaTeam living with or caring for a child with hemophilia. Results were presented at the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), 22nd Annual International Meeting in Boston, 2017.

For questions about this research or to discuss partnering on future research, please email us.