Patient Insights Case Study: Hemophilia Outcomes Impacting Trial Design, Bioverative

POWERFUL INSIGHTS: Like an ice berg, there is always something more to every disease—including hemophilia.
Bioverativ wanted to understand which outcomes matter most to people with hemophilia. Traditional endpoints focused on controlling the bleeds.

A survey of MyHemophiliaTeam members revealed that depression and the pain and mobility issues that cause it impact daily life tremendously. Key takeaway: treat the whole iceberg.

Most members felt these secondary symptoms aren’t being addressed, as a result these symptoms are often untreated.

Powerful Insights on MyHemophiliaTeam

Further research quantified the functional impact of pain from hemophilia on their day-to-day activities that could be considered as important patient outcomes.

We Share Insights Back to the Community

One partner collaborated with us to study the symptoms of lupus, how they differ by race, and patient priorities for new treatments. We share the top line results back to the community as infographics.

Our research collaborations are regularly featured at industry conferences. View recent posters and publications.

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